ADELLE'S UPDATE

17th October 2013

Hello everyone

Just a quick update as it has been a quite busy few days a after starting work.

Adelle has been having a few not so good days where she would be lethargic and sleep or just watch movies and more of good days where she would be fairly active and wanting to walk around the house and keep busy in her play room. Ben and i have to walk behind her in case she false over as she is quite wobbly. sometimes if she figured, she is too wobbly she would walk on fours instead. She has not complained of headaches  recently as we are giving her pain killers on a regular basis. Her appetite is on and off and she's figured that the thickened fluid prevents her from coughing when drinking. So she's happy with us thickening all her fluids and she would even help me dissolve the thickener in the water jug.

Yesterday she wanted to ride her bike. She managed to cycle one lap around our block. I'm so proud of her determination.

On wednesday she wanted to put braids in her hair. after i platted her hair she showed new a personality. she asked me if she can sleep by herself in her room that night and wanted to speak to Anahera on the phone to tell her about the hair.  She took the phone away from me and walked around the house while chatting (which i tend to do). It's amazing how a new hairdo boost our confidence level.

On Friday Anahera kept her company for the day and they had a good quiet play and watched movies. We had more visitors from perth, our local parish and from our school on the weekend. Thank you Nikki, Maura and the Sopha family for coming and spoiling her. Hannah the teddy has now a new brother, Lucky.

Our local parish Rosary group organised for a special prayer quilt to be made just for her. Thank you Maura and all the rosary girls for the fantastic idea.  I will send pictures once i get the quilt blessed.

On tuesday she was excited for the first day back at school and woke up 6 in the morning and wanted to get ready. She had a wonderful morning at school. The school has now allocated a teacher assistant to her when she is at school which is just fantastic.

i am now back at work full time while Ben is doing full time carer. the past two days back at work has not been easy and i had to re-teach myself how to switch on "work mode" which i was managing very well last term. i am sure it will come back to me, maybe i am still in holiday mode.


Thank you to everybody who has been emailing, calling and messaging to check how she's doing. i really appreciate that you all care and wishing her well.